This is the website for the cutest little guy ever!!
He has a very rare skin disorder called Junctional Epidermolysis Bullosa Herlitz-Type (JEB)
We only know part of his family, but they are awesome - and when you read about Daylon and his family you'll fall in love too!!
He and his family are in Minnesota right now preparing to participate in a clinical trial involving chemotherapy and a bone marrow transplant from his hero of an older brother.
They have been having lots of local fundraisers to help their family with the costs of Daylon's medical bills and care and I just wanted to share the website with all of you to see. They were having a Spaghetti Dinner this Saturday that has been postponed for a month or two that we were planning to go to, so if any of you would like to go with Greg and I please let us know, it will be a great dinner and we would love to see some of our friends there and have a fun night out while the kids are with a babysitter!!
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